Health
Mother's essay recounts raising Elsie, born with ultra-rare RARB gene disorder
Guardian publishes Christelle Randall's essay on raising Elsie
1 Sep 16 12:00 AM · 9d ago · 2 articles · 2 posts · 4 sources · development 1 of 1
The Guardian runs the personal essay describing Elsie's diagnosis, symptoms, home life and the family's daily experience of the rare condition.
“so rare that there are fewer than 100 known cases in the world”
Christelle RandallElsie Subject of the essayChristelle Randall Elsie's mother, essay authorDan Elsie's father, Christelle's partner
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first by Guardian Science, 9d ago · also The Guardian
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